International Angelman Day (IAD) is an annual event held on February 15th. It is observed by 50 international charitable/support organisations around the world. These organisations support people with Angelman Syndrome, their families, care givers, and service providers; some also promote and initiate research for AS; and others create educational resources. Together we have a greater voice.
WHO ARE WE?
The IAD Collective is an informal group of not-for-profit charitable organisations operating independently in different countries. While each organisation has different missions, they all support people with Angelman Syndrome and their families. Broadly speaking, the global AS community supports individuals and families internationally – through networking events, educational conferences, advice on day-to-day management strategies, family peer-to-peer connections, and in the funding of research into treatments for Angelman Syndrome.
WHY DO WE HAVE AN INTERNATIONAL DAY?
- There has never been a specific International Angelman Day and we have a common agreement among participating organisations to recognise February 15th annually.
- There are many formal, mature organisations as well as newly formed groups and unincorporated associations so there is now a sufficient presence in multiple countries to establish an International Day.
- Recent scientific advances show that there are potential treatments for the cognitive, motor and epileptic aspects of Angelman Syndrome, as well as strides in better understanding symptom management and educational strategies. IAD is a trigger to spread global awareness using up-to-date information. The most recent, up-dated material can be translated into other languages and distributed in participating countries all around the world.
The purpose of this day is to:
- Raise awareness worldwide of the condition
- Mobilise people to action & encourage fundraising for the individual organisation in their country
- Promote research and educational resources in the organisation’s own country.
- Remember those people with Angelman Syndrome who are no longer with us.
Inclusive, Ambitious, Professional, Respectful, Knowledgeable