2014

Lists & Links to Events worldwide

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IRELAND

Sara Hetherington: Angelman Syndrome Ireland are delighted to support International Angelman Day February 15th with a targeted ‘About Angelman’ postcard campaign to healthcare and medical practitioner’s. This aims to raise awareness of International AS day, the Irish National Charity and our commitment to funding research. Throughout the month of February we will be distributing this card to those who work with and support our families. For more information see www.angelman.ie

Coffee Morning at The Beach Hotel, Downings :International Angelman Day falls every year on 15th February and this year we are proud to host a Coffee Morning to raise funds for Angelman Ireland.The Coffee Morning will take place here at The Beach Hotel, Downings on Saturday 15th February from 10am to 1pm.  So, if you have the culinary skills to bake something delicious or would like to volunteer on the day, contact Victoria on 0876336339

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NEW ZEALAND 

The Angelman Network:  ENDURO-CHALLENGE event on 15th Feb, at The University of Auckland Health and Performance Clinic, AUCKLAND

Our FOR THE ANGELS fundraising team want to celebrate International Angelman Day in style! The team plans to ‘cover the distance’ from Auckland to the start of the Gold Rush on the South Island — the big event in March they are training for. www.goldrush.co.nz That’s 1512kms in ONE day!!  They will need our help…All The Angelman Network families are invited to come along and support FOR THE ANGELS in this ENDURO CHALLENGE – anytime from 9am onwards. For a $5 donation you can help them cover some of the distance on the Exercise Bike, Treadmill or Rowing Machine, and also get into the draw for some pretty cool prizes. OR you can help by promoting their givealittle donation page: www.givealittle.co.nz/cause/fortheangelsThere will be a sausage sizzle and some refreshments from around 11am in the grounds outside the gym. Gazebos will be available for shade. Bring along your picnic blanket, some lunch, your friends and family, and enjoy this special day together.
awareness poster campaign – these can be customised and used for social media networks on the internet or printed and distributed
Andrew poster 2014small
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NORTH AMERICA:               
Foundation for Angelman Syndrome (FAST) 
Ruby Tuesday campaignRuby Tuesday’s – Let’s EAT for a CURE!
http://www.cureangelman.org/donate.htmlFoundation for Angelman Syndrome (FAST) is celebrating International Angelman Day (IAD) by organizing a fundraiser in conjunction with Ruby Tuesday’s across the US.Please join friends and family at your local Ruby Tuesday on Saturday, February 15th. FAST will be given 20% of the meal ticket/tab for anyone who brings the printed flyer with them. FAST (and all our Angels) will benefit from you filling your belly with a delicious meal!
Link to facebook Event Page, HERE
This event is public so please share with everyone you know! If you are willing, please post your name and email as a contact for flyers that you have access to.
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AngelsOnEarth 2014 Collection – Tshirts to support FAST
FAST Tshirt
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Ann Marie Fennelly/Parent : Pampered Chef fundraiser
ONLINE – from the comfort of your home. In honor of International Angelman Syndrome Day on February 15th, I’m hosting an online Pampered Chef fundraiser NOW THROUGH 2/15. Thanks to my friend Tricia, any money raised will be divided evenly between two organizations that have supported my family since Sean was diagnosed with AS, The Angelman Syndrome Foundation (ASF) advances the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. More information can be found at www.angelman.orgThe Foundation for Angelman Syndrome Therapeutics (FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy. More information can be found at www.cureangelman.org.

JOIN this event NOW to get recipes, tips for making life in the kitchen easier and more fun even on the BUSIEST of schedules. Whether you like to cook, hate to cook, don’t know how or don’t have time to cook, The Pampered Chef has something for everyone who EATS. Browse & Shop Securely Online by February 15th at  www.tinyurl.com/AngelmanFeb2014 .  Products can be shipped direct to your doorstep, anywhere in the continental U.S.

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Kathy Anderson/Parent
Dr. Yi will present information about his recent Angelman Syndrome research findings and new studies ongoing in NC. More info to come.  Refreshments served.  There will be t-shirts for sale, an attendant gift/goody bag and you will be able to register on-site to receive invitations to future events with guest speakers on topics relating to raising children with complex health concerns.
One of the buildings in Charlotte, NC – US,  will light their building in honor of local events. I asked them to do blue for IAD and they agreed. They will do it on 2/13 and tweet about it.
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Chris Covliello/Parent
For IAD, we have been placing business cards around the city in an attempt to raise awareness for AS and IAD. The front of the cards have the IAD logo with links to FAST, ASF, and the IAD Facebook group. The back of the cards are descriptive and contain a short list of AS characteristics. If anyone would like the preformatted layouts, I will be more than happy to email them to you. All you have to do is buy business card stock and print them.
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Gobal – Tweeting campaign for FAST, by parent: Donna InSussex ‏@DonnaInSussex  1h

“I’m tweeting 15 daily tweets for Angelman Syndrome from the 1st – 15th Feb, International Angelman Day https://www.facebook.com/InternationalAngelmanDay … #cureangelman.  I send out a tweet on the hour between 8am and 10pm. I have a program that allows you to schedule them in advance, so I’m setting them all up a day at a time, the night before.  I’m going to need 225 short facts about AS – 117 characters or less (to leave room for the cureangelman web address).

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                                                                                                    Becky Clubbs/Parent

We are having a spaghetti dinner to benefit the Foundation for Angelman Syndrome Therapeutics on 2/16 from 12-2. Tickets are $10 in advance or you can give any size donation at the door. There will also be a raffle. Raffle tickets are $2/ticket or 3 for $5. The raffle will include a one night stay at Spring Hill Suites by Marriott, 6 zoo tickets, an Avon basket and other items. If you would like to know more about FAST, please visit their website at www.cureangelman.org.

 

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                                                                              Teresa Eberhart/PARENT 

Nebraska- Iowa – Missouri – South Dakota. 

IAD celebration in Omaha. February 15: Lunch at 100 PM. UNO Basketball Game (including AS awareness and FAST fundraising) @ 4 PM. Following game: dinner on own and then meeting at hotel pool/bar for some relaxing fun time.  Block of discounted rooms at the Courtyard Marriot.  Thank you to Dick and Evelyn Holdren Yost for helping us to secure spots for the celebration!

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        Tami Mugler/Parent: Fundraiser for HarliCan Inc.

International Angelman Day shirts, raising awarness and reflecting the Unity of our Global Community. https://www.facebook.com/harlicaninc?v=app_190322544333196

tamis shirts________________________________________________________________

Bethan McCutcheon/Parent (fundraiser for FAST, in Canada)

Public Skating Event: INFO HERE

Raise funds for research and educational resources…Press the green donate button and make a donation.  http://www.firstgiving.com/fundraiser/catchthecure/threekids

This February 15th, we want to have a town party to celebrate our kids – our kids, and your kids. We want to do the following:
1) Raise awareness about AS
2) Raise funds for the cure
3) Empower the children in our town to get involved and help others
4) Show the world what our town is like

Please come to the Minden Arena from 5:30 – 7:30 with your family, friends, and anyone you can grab along the way. The ice will be open for a public skate from 5:30 – 7:30. But that’s not all! There will be face painting, hot food, hot chocolate, a bake sale, and a silent auction.

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From Angelman Syndrome Foundation (ASF, USA): More ideas on how you can participate in IAD by spreading awareness for AS: HERE

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CANADA:  
The Canadian Angelman Syndrome Society (CASS) is hosting a roller skating party at Scooters Roller Palace in Mississauga! http://www.scooters.caDate: February 16th.  Time: 11am (we will skate until 12pm and then have a pizza party)

Special kids unable to roller skate can be pushed in their wheelchairs/strollers – we have rented the entire place for our event so that all kids can participate. We have 60 attendees so far. If you would like to attend please contact me ASAP. Heidi Blackburn.

PS I will be hosting a small awareness event at Craigleith Ski Club on the 15th as we will be there for the day for Callum’s ski session. Also: Callum’s school is once again supporting IAD by wearing the colours of IAD on Friday the 14th!

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The Netherlands:

NINA Foundation, IAD T-shirts – promoting awareness

NINA foundation

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GERMANY:
poster campaign for awareness. Photos can be personalised.

Germany

Weltweit: Der 15. Februar rückt immer näher und damit der International Angelman Day! Hier kommt unser Vorschlag wie alle Angelman-Familien für ein klein wenig Aufmerksamkeit für das Syndrom und somit für ein wenig mehr Verständnis für unsere Kinder sorgen kann:
Hängt das Plakat 10 Tage vor dem 15. Februar in der Schule, oder dem Kindergarten, oder der Einrichtung, die euer Angel besucht auf und klebt ein Foto von eurem Kind dazu. Vielleicht wisst ihr auch noch einen anderen Ort, z.B. der Kinderarzt, das Früförderzentrum … ? Fragt doch einfach mal nach, ob das geht!Bestellungen bitte bis zum 26.1.2014 an
https://www.facebook.com/conny.schendlerVorschläge für weitere Aktionen: Info-Stände, Spendensammlung für die Forschung, Berichte in der Tagespresse, Benefiz-Aktionen…
Eurer Fantasie sind keine Grenzen gesetzt.  Zusätzlich können auch Flyer und Info-Folder bestellt und ausgelegt werden. Vielen Dank für eure Mithilfe.
German info material

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AUSTRIA:

poster campaign for awareness

Austria

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SWITZERLAND:

poster campaign for awareness

Switzerland

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SPAIN:

Juan Jose Perez Fernandez: We are organizing two sporting events.  Our goal is to spread awareness of Angelman syndrome and also to raise funds for the current Minocycline trials.

Spain event route

1.- A Mountain bike ride.
http://marchaangelman.wordpress.com/english/mountain-bike-ride/

2.- A Hiking trail.
http://marchaangelman.wordpress.com/english/hiking/

Also a social event: a fun gathering

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JAPAN

Mizukawa Masako: The long distance relay road race will be postponed due to make it more attractive event.
This year Japan Angelman Syndrome Support Group will hold some indoor events – a luncheon party & music event. We will invite some scientists, too. We’re planning to share a pleasant time together!

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