Lists & Links to Events worldwide
Sara Hetherington: Angelman Syndrome Ireland are delighted to support International Angelman Day February 15th with a targeted ‘About Angelman’ postcard campaign to healthcare and medical practitioner’s. This aims to raise awareness of International AS day, the Irish National Charity and our commitment to funding research. Throughout the month of February we will be distributing this card to those who work with and support our families. For more information see www.angelman.ie
Coffee Morning at The Beach Hotel, Downings :International Angelman Day falls every year on 15th February and this year we are proud to host a Coffee Morning to raise funds for Angelman Ireland.The Coffee Morning will take place here at The Beach Hotel, Downings on Saturday 15th February from 10am to 1pm. So, if you have the culinary skills to bake something delicious or would like to volunteer on the day, contact Victoria on 0876336339
The Angelman Network: ENDURO-CHALLENGE event on 15th Feb, at The University of Auckland Health and Performance Clinic, AUCKLAND
This event is public so please share with everyone you know! If you are willing, please post your name and email as a contact for flyers that you have access to.
JOIN this event NOW to get recipes, tips for making life in the kitchen easier and more fun even on the BUSIEST of schedules. Whether you like to cook, hate to cook, don’t know how or don’t have time to cook, The Pampered Chef has something for everyone who EATS. Browse & Shop Securely Online by February 15th at www.tinyurl.com/AngelmanFeb2014 . Products can be shipped direct to your doorstep, anywhere in the continental U.S.
For IAD, we have been placing business cards around the city in an attempt to raise awareness for AS and IAD. The front of the cards have the IAD logo with links to FAST, ASF, and the IAD Facebook group. The back of the cards are descriptive and contain a short list of AS characteristics. If anyone would like the preformatted layouts, I will be more than happy to email them to you. All you have to do is buy business card stock and print them.
“I’m tweeting 15 daily tweets for Angelman Syndrome from the 1st – 15th Feb, International Angelman Day https://www.facebook.com/InternationalAngelmanDay … #cureangelman. I send out a tweet on the hour between 8am and 10pm. I have a program that allows you to schedule them in advance, so I’m setting them all up a day at a time, the night before. I’m going to need 225 short facts about AS – 117 characters or less (to leave room for the cureangelman web address).
We are having a spaghetti dinner to benefit the Foundation for Angelman Syndrome Therapeutics on 2/16 from 12-2. Tickets are $10 in advance or you can give any size donation at the door. There will also be a raffle. Raffle tickets are $2/ticket or 3 for $5. The raffle will include a one night stay at Spring Hill Suites by Marriott, 6 zoo tickets, an Avon basket and other items. If you would like to know more about FAST, please visit their website at www.cureangelman.org.
Nebraska- Iowa – Missouri – South Dakota.
IAD celebration in Omaha. February 15: Lunch at 100 PM. UNO Basketball Game (including AS awareness and FAST fundraising) @ 4 PM. Following game: dinner on own and then meeting at hotel pool/bar for some relaxing fun time. Block of discounted rooms at the Courtyard Marriot. Thank you to Dick and Evelyn Holdren Yost for helping us to secure spots for the celebration!
Tami Mugler/Parent: Fundraiser for HarliCan Inc.
International Angelman Day shirts, raising awarness and reflecting the Unity of our Global Community. https://www.facebook.com/harlicaninc?v=app_190322544333196
Bethan McCutcheon/Parent (fundraiser for FAST, in Canada)
Public Skating Event: INFO HERE
Raise funds for research and educational resources…Press the green donate button and make a donation. http://www.firstgiving.com/fundraiser/catchthecure/threekids
This February 15th, we want to have a town party to celebrate our kids – our kids, and your kids. We want to do the following:
1) Raise awareness about AS
2) Raise funds for the cure
3) Empower the children in our town to get involved and help others
4) Show the world what our town is like
Please come to the Minden Arena from 5:30 – 7:30 with your family, friends, and anyone you can grab along the way. The ice will be open for a public skate from 5:30 – 7:30. But that’s not all! There will be face painting, hot food, hot chocolate, a bake sale, and a silent auction.
From Angelman Syndrome Foundation (ASF, USA): More ideas on how you can participate in IAD by spreading awareness for AS: HERE
The Canadian Angelman Syndrome Society (CASS) is hosting a roller skating party at Scooters Roller Palace in Mississauga! http://www.scooters.caDate: February 16th. Time: 11am (we will skate until 12pm and then have a pizza party)
Special kids unable to roller skate can be pushed in their wheelchairs/strollers – we have rented the entire place for our event so that all kids can participate. We have 60 attendees so far. If you would like to attend please contact me ASAP. Heidi Blackburn.
PS I will be hosting a small awareness event at Craigleith Ski Club on the 15th as we will be there for the day for Callum’s ski session. Also: Callum’s school is once again supporting IAD by wearing the colours of IAD on Friday the 14th!
NINA Foundation, IAD T-shirts – promoting awareness
https://www.facebook.com/conny.schendlerVorschläge für weitere Aktionen: Info-Stände, Spendensammlung für die Forschung, Berichte in der Tagespresse, Benefiz-Aktionen…
Eurer Fantasie sind keine Grenzen gesetzt. Zusätzlich können auch Flyer und Info-Folder bestellt und ausgelegt werden. Vielen Dank für eure Mithilfe.
poster campaign for awareness
poster campaign for awareness
Juan Jose Perez Fernandez: We are organizing two sporting events. Our goal is to spread awareness of Angelman syndrome and also to raise funds for the current Minocycline trials.
1.- A Mountain bike ride.
2.- A Hiking trail.
Also a social event: a fun gathering
Mizukawa Masako: The long distance relay road race will be postponed due to make it more attractive event.
This year Japan Angelman Syndrome Support Group will hold some indoor events – a luncheon party & music event. We will invite some scientists, too. We’re planning to share a pleasant time together!